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make it make sense😭 VD: Tayler, a young white thin woman with medium length brown hair, lip syncing the song. The text reads, “ so you want to be tested for this disease because you have all the symptoms? Yes my symptoms match almost perfectly, and I don’t have any other diagnosis to explain them. Well, you don’t want to have this disease. It’s not fun. Well, whether you test me or not, if I have it, then I have it… I understand but it’s a horrible one to have, there’s no treatment so you don’t want to have that one. even if there isn’t treatment, it’s still helpful to know if I have it or not. Avoiding a diagnosis doesn’t change that. I’m just going to put a more vague description of your symptoms since we don’t know, the testing is unnecessary. I don’t understand.” #disability #chronicillness #medicalgaslighting #eds #ehlersdanlossyndrome #heds #pots #mcas #endo

@Joshua Smith, PA-C @Joshua Smith, PA-C the original creator being a GI really drives it home…. A better use of using TikTok to discuss your patients medical information (which is problematic in the first place) would be to list symptoms and findings and ask if anyone has insight that you may not. I also want to add: the term “medical gaslighting” is thrown around really lightly these days, and a provider providing evidence that alternatives are not an accurate diagnosis and you don’t agree - that is not medical gaslighting. What IS medical gaslighting is calling your patient a hypochondriac, giving a diagnosis without ruling out differentials and blowing off their concerns. in all seriousness, this type of mindset from providers is really harmful to patients and is why so many of us advocate for better education and open mindedness. The amount of us in this community that have been told the same or worse by a doctor (bonus points if it was a GI), is astounding but also unacceptable. I don’t think this provider was wanting genuine feedback or criticism, but I hope he takes what patients who lived this offers. VD: Tayler, a young white thin woman with medium length brown hair, is stitching a video. #chronicillness #disability #eds #pots #medicalgaslighting #medicaltrauma #tummyissues #greenscreenvideo #greenscreen